Abstract: Objective To explore the self?management behavior of patients with advanced schistosomiasis，so as to provide the evidence for improving clinical nursing. Methods A total of 18 patients with advanced schistosomiasis were interviewed in depth by using a semi structured interview method. The results were analyzed with Miles and Huberman content analysis method. Results Most of the patients with advanced schistosomiasis had self?management control behavior and were cooperated with medi? cal assistance because of their seriously illness. Based on data analysis，the symptom management，follow? up management，a healthy lifestyle，medication awareness，and emotional management were obtained. Conclusion The patients with advanced schistosomiasis have self management control behavior. Health care workers should promote the patients，their families and social people to participate in the self?management behavior of advanced schistosomiasis patients.

Key words: Advanced schistosomiasis； Self?management； Qualitative research

摘要： 目的 目的 探讨晚期血吸虫病 （晚血） 患者的自我管理行为， 为临床护理提供科学资料。方法 方法 采用质性研究的现象 学研究方法， 以半结构式访谈方法， 选择18例晚血患者做深度访谈， 并采用Miles 和Huberman 内容分析法对资料进行分析 和归纳。结果 结果 晚血患者多由于病情严重， 具有一定的自我管理控制行为， 尚能配合医疗救助。通过深度访谈资料分析， 提炼出症状管理、 情绪管理、 健康生活方式、 随访管理和服药意识等5个主题。结论 结论 晚血患者具有较好的自我管理行为， 医护人员要加强督促患者及其家属和社会参与晚血患者的自我管理。

关键词: 晚期血吸虫病； 自我管理； 质性研究